24/364

Rare Disease Day is a 24-hour moment. These stories are about the other 364 days.

In the Light is a docuseries created by 24/364 that illuminates the daily lived experience of rare disease. The stories are told by the people who know it best: patients, caregivers, families, and the communities standing beside them.

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Behind every diagnosis is a life still being lived. Appointments and uncertainty, ordinary routines and extraordinary resilience, hard days and happy memories. These are the realities that exist beyond Rare Disease Day and other high-awareness events.
Woman with rare disease and her husband care giver

In the Light Docuseries

Episode 1: Dee & Dan

Dee and Dan invited us into their lives to show what rare disease can ask of a person, a partner, and a family. Their story is about complexity and care, but also about the small rituals, stubborn hope, and everyday connection that keep them moving forward.

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Episode 2 of In the Light is currently in production.

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Couple looking away thoughtfully
“She will not give up. She will take each day, each hour as it comes.”
Dan, husband and caregiver of Dee, who lives with Niemann Pick Disease
24/364 - Keeping the light on for rare

Get updates about our films, events, drops and more.

You’ll be the first to know about 24/364 film festival news, plus content and opportunities to stand with the rare disease community on the 364 days beyond Rare Disease Day.