Keeping the light on
for rare.
24/364 is a year-round visibility platform for rare disease stories, created to help keep attention, understanding, and support from disappearing when Rare Disease Day ends.
Join the movementOur manifesto:
A platform for the days after awareness
Through storytelling, inspiration, and experiences, 24/364 turns isolation into belonging and visibility into shared strength.
This isn’t a single event, campaign, or moment. It’s our way of elevating rare voices, showing up with powerful presence, and showing the world what living with a rare disease really means 24 hours at a time.
24/364 is a symbol that declares people living with rare diseases and those who stand with them won’t disappear when the spotlight does.
The latest from 24/364
Connect with us
Follow 24/364 for new stories, film festival updates, community moments, and ways to keep rare disease visible year-round.
Explore the stories.
Experience the festival.
Meet the people sharing their rare disease experiences, then learn how the 24/364 Rare Disease Film Festival will bring more stories into view.
