24/364 is a cultural brand platform that brings year-round visibility to the lived experience of rare disease.

Building on the awareness Rare Disease Day creates annually, 24/364 represents the reality that follows — the other 364 days of resilience, uncertainty, courage and connection. This isn’t a single event, campaign or moment. It’s a way of showing up with lasting support and powerful presence. Through storytelling, inspiration and experiences, 24/364 turns isolation into belonging and visibility into shared strength. Our iconic symbol declares that people living with rare diseases and those who stand with them won't disappear when the spotlight does.